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Journal article

Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure

Abstract:
Background Genomic and biosocial research data about individuals is rapidly proliferating, bringing the potential for novel opportunities for data integration and use. The scale, pace and novelty of these applications raise a number of urgent sociotechnical, ethical and legal questions, including optimal methods of data storage, management and access. Although the open science movement advocates unfettered access to research data, many of the UK’s longitudinal cohort studies ... Expand abstract
Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.1186/s40246-018-0154-6

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Grant:
MR/N01104X/1
MR/N01104X/2
Economic and Social Research Council More from this funder
Publisher:
BioMed Central Publisher's website
Journal:
Human Genomics Journal website
Volume:
12
Article number:
24
Publication date:
2018-04-26
Acceptance date:
2018-02-28
DOI:
ISSN:
1479-7364
Source identifiers:
832513
Pubs id:
pubs:832513
UUID:
uuid:0256da7b-2f5d-45f9-ba33-03d53569f5af
Local pid:
pubs:832513
Deposit date:
2018-04-04

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