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The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases

Abstract:

Background

Research into rare diseases is becoming more common, with recognition of the significant diagnostic and therapeutic care gaps. Registries are considered a key research methodology to address rare diseases. This report describes the structure of the Rare UK Diseases Study (RUDY) platform that aims to improve research processes and address many of the challenges of carrying out rare musculoskeletal disease research.


RUDY is an internet-based platform with onl...

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Publication status:
Published
Peer review status:
Peer reviewed

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Files:
Publisher copy:
10.1186/s13023-016-0528-6

Authors


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Institution:
University of Oxford
Division:
MSD
Department:
NDORMS
Role:
Author
More by this author
Institution:
University of Oxford
Division:
MSD
Department:
NDORMS
Role:
Author
More by this author
Institution:
University of Oxford
Division:
MSD
Department:
NDORMS
Role:
Author
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National Institute of Health Research More from this funder
Publisher:
BioMed Central Publisher's website
Journal:
Orphanet Journal of Rare Diseases Journal website
Volume:
11
Pages:
150
Publication date:
2016-11-01
Acceptance date:
2016-10-10
DOI:
ISSN:
1750-1172
Source identifiers:
656117
Keywords:
Pubs id:
pubs:656117
UUID:
uuid:924c7b99-4d35-4ef4-8164-9ab3d1517150
Local pid:
pubs:656117
Deposit date:
2016-11-03

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