Thesis
Sharing findings on sickle cell disorder in international collaborative biomedical research: an empirical ethics study in coastal Kenya
- Abstract:
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Against the background of a dilemma experienced by researchers during a genomics study at an established biomedical research centre in Kenya, the broad aims of this thesis are to develop appropriate responses to important ethical questions on sharing information on a common and serious genetic condition, sickle cell disorder, and assess the responsibilities of researchers in this regard. Using an empirical approach to normative reflection across two phases of qualitative research, I explore t...
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Authors
Contributors
+ Parker, M
Division:
MSD
Department:
Nuffield Department of Population Health
Role:
Supervisor
+ Molyneux, C
Division:
MSD
Department:
Nuffield Department of Population Health
Role:
Supervisor
+ Fitzpatrick, R
Division:
MSD
Department:
Nuffield Department of Population Health
Role:
Supervisor
Bibliographic Details
- Publication date:
- 2012
- Type of award:
- DPhil
- Level of award:
- Doctoral
- Awarding institution:
- University of Oxford
Item Description
- Language:
- English
- Keywords:
- Subjects:
- UUID:
-
uuid:b693b762-5ce8-4109-82ea-4cf7ba38675e
- Local pid:
- ora:6321
- Deposit date:
- 2012-07-04
Terms of use
- Copyright holder:
- Marsh, VMC
- Copyright date:
- 2012
- Notes:
- The research leading to the development of this thesis was supported by the Kenya Medical Research Institute and the Wellcome Trust, UK.
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