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Communicating genetics research results to families: problems arising when the patient participant is deceased.

Abstract:

OBJECTIVES: This study explores communication within families of clinically significant genetics research results, after the death of the patient participant. BRCA2 mutations were found in several men after their death from prostate cancer. Spouses were given the results in a genetic counselling session and asked to inform relatives. METHODS: Cross-sectional, qualitative exploratory study. Interviews with 13 relatives, including informers and recipients of the information, were analysed usin...

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Publisher copy:
10.1002/pon.1356

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Journal:
Psycho-oncology
Volume:
17
Issue:
8
Pages:
804-811
Publication date:
2008-08-01
DOI:
EISSN:
1099-1611
ISSN:
1057-9249
Source identifiers:
200660
Language:
English
Keywords:
Pubs id:
pubs:200660
UUID:
uuid:be6a412b-180c-4834-9e88-962802a73da5
Local pid:
pubs:200660
Deposit date:
2013-11-16

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